Wednesday, February 14, 2024

"All of Me"

Isaac is playing "All of Me" by John Legend and Roman is acting all Ray Charles, but without the sunglasses.


 Yes, yes.  I am crying in this video.  Roman's therapist had changed his straw and cup (same formula) the day before.  He "could" drink out of it, but he was refusing it this particular evening.  We tried everything and he was just screaming and angry that he couldn't have his old straw cup.  When everyone had finished dinner and Isaac started playing the piano, I sat there next to him because Roman loves to "play" the piano with him.  Brian was videoing this because, of course, it is adorable and I was just thinking how exhausted I was from the struggle and how wonderful and very worth it Roman is.  They were tears of joy and struggle all mixed up.

He ended up drinking from the cup when he was calm and distracted by the piano.  We have since backed up and are working on that straw and cup in therapy and trying to push him, but not too much.  It's a very fine line.

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