Monday, January 22, 2024

Roman's Heartiversary on January 21st!

 





Today is Roman's heartiversery! It's been 2 years since he had his heart surgery to correct his complete AV canal defect. Roman would not be alive if his surgeons had not been able to perform this surgery for him. We thank God for his surgeons and for the medical advances to make his life possible. He is doing great! His cardiologist said his heart looks good and cleared him to be seen in one year for his next checkup. Although he has a couple sutures trying to work their way out from his chest, it is otherwise closed, uninfected, and we've been told not to worry about them. 😊

He's had another rough autumn/winter so far with many illnesses. He had COVID and RSV again, as well as Strep, a couple ear infections, and a sinus infection. He did get his second set of ear tubes on December 12th, and that has been uncomplicated which is always our hope.  

We are, as always, so grateful for all the prayers 🙏. He's truly been such a blessing to each of his brothers and sisters and to Brian and I. Here's to another year with this little man with a big heart. 



His face has had this rash for a while due to all the slobber and snot that are constantly on his face.  We are alternating between vaseline and aquafor right now which has worked in the past, but not so well right these days.




Having his formula with Daddy and Luna while watching some football.  He loves football and basketball so far.

This morning, the day after his heartiversary, he had speech therapy.  I showed her his list of words that he can say, he demonstrated some of them during therapy, and she said that she has never had any child with Down syndrome with this many words.  She said he is really bright.  That just made my day!

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